The Blue Monkey Foundation
ForFinn.
ForeveryfamilyfightingDuchenne.
We fund the research, support the families, and carry forward the joy of a boy who taught us how much light one life can hold.
Our Mission
To end Duchenne in our lifetime. And to walk beside every family until we do.
Duchenne muscular dystrophy is a rare, progressive disease that affects roughly 1 in 5,000 boys. There is no cure yet. The Blue Monkey Foundation funds high-impact research, supports families through diagnosis and care, and builds a community that refuses to let any child fight alone.
Our mission is simple: one blue monkey for every person affected by Duchenne. A symbol that no one fights alone.
Fund the science
We back urgent, translational research: gene therapy, exon-skipping, and clinical trials moving toward a cure.
Support the families
From the day of diagnosis, we connect parents to care navigators, equipment grants, and a community that has been there.
Raise the voice
We share the stories of Finn and every family so that Duchenne is never invisible again.
One blue monkey per person
Our mission is to put one blue monkey in the hands of every person affected by Duchenne. A symbol that no one fights alone, and that Finn's love is still reaching people.
Why a blue monkey
He carried a little blue monkey everywhere. So now, so do we.
Finn was the kind of person who made every room better. He was lovable, endlessly caring, quick to make you laugh and quicker to make sure you were okay. His stuffed monkey went with him everywhere, and it was blue, of course. That little guy is where this whole foundation gets its name.
He lived loudly through the things he loved. Long nights deep in his favorite video games. Shelves lined with figures he collected with the focus of a curator. Star Wars, Marvel, characters from every game he couldn't put down. Every piece had a story, and he could tell you every one of them.
Finn's joy was bigger than any diagnosis. He faced hard days with courage, but he never let them steal his smile or his curiosity. That same spirit is what fuels this foundation. We are here to make sure no one faces Duchenne alone.
Our mission is simple: give a blue monkey to every person affected.
A little comfort, a little courage, and a reminder that someone is fighting for them. Whether you are a child newly diagnosed, a parent navigating the unknown, or a family in the hardest season, we want you to have a blue monkey of your own.
About Duchenne
A disease most people have never heard of, until it changes everything.
Duchenne muscular dystrophy (DMD) is a genetic condition that progressively weakens every muscle in the body. It almost exclusively affects boys, usually diagnosed before age five. Today, the average life expectancy is just into the twenties.
boys born with Duchenne worldwide
of children diagnosed are affected for life
approved cures, but research is closer than ever
Where the money goes
Every dollar moves us closer to a world without Duchenne.
We partner with leading research institutions and the families on the front lines to fund the most promising work and support those living with Duchenne today.
Give in Finn's name
Your gift becomes a blue monkey. Becomes comfort. Becomes courage.
Sends one blue monkey to a child facing Duchenne.
Sends a blue monkey to four children who need a little courage.
Brings blue monkeys to an entire clinic waiting room.
Helps us reach families across a whole community.
The Blue Monkey Foundation is a registered 501(c)(3) nonprofit. All gifts are tax-deductible to the extent allowed by law.
Get involved
Walk with us.
Whether you've lost someone, love someone, or just want to help, there's a place for you here.